Researchers guardians of trust in biobank research
Do we trust biobank researchers? In a doctoral thesis from Uppsala University, medical doctor and bioethicist Linus Johnsson claims that we do: At least in Sweden. And since we do, researchers in turn have a moral responsibility towards us.
On March 9, Linus Johnsson, medical doctor and bioethicist at the Centre for Research Ethics & Bioethics (CRB), will defend his thesis on trust in biobank research. Trust is a sensitive issue in all research, but perhaps particularly so when it comes to biobanks. There has been debate on whether the police should be able to access samples, and whether this would lead to distrust and to people withdrawing their samples. In Sweden, the PKU biobank became famous in 2003 after foreign minister Anna Lindh's murderer was identified through blood stored there.
Public trust in the research community is often measured in surveys. In one study, Linus Johnsson shows that people may be more willing to donate samples than most of these surveys indicate. Especially if health care personnel approach them face-to-face. He believes that this is because relationships of trust are important in our decision making.
In another study, Linus Johnsson found that trust is very much present, at least in the Swedish biobank settings he has studied. According to him, researchers have to consider the expectations that people have of them. The fact that they are trusted in turn means that they have a responsibility towards the public.
Despite ethics review, guidelines and informed consent procedures, ethical issues will always arise during the course of a research project, says Linus Johnsson. He warns against putting too much trust in regulatory systems.
"Relying on formal rules and regulations to guarantee research participants' trust is not enough. They can never cover all ethical considerations that researchers should make", he says.
In his thesis, Linus Johnsson sees a danger that the review system fosters researchers to a kind of moral complacency. If we trust the system to take care of everything we risk researchers becoming blind to the ethical issues that are not covered by rules.
"Putting too much trust in the system could potentially alienate researchers to ethics. Following rules is not enough. Researchers and institutions have to reflect on what their duties are", Linus Johnsson says.
Provided by Uppsala University
- To trust or not to trust your friends Jan 30, 2007 | not rated yet | 0
- Researcher argues moral duty of participation in biobank research Sep 20, 2012 | not rated yet | 0
- Public prefers limited informed consent process for biobanks Jun 29, 2011 | not rated yet | 0
- Safeguards needed for tissue donors Jan 28, 2013 | not rated yet | 0
- Trust your gut? Study explores religion, morality and trust in authority Sep 14, 2009 | not rated yet | 0
- Motion perception revisited: High Phi effect challenges established motion perception assumptions Apr 23, 2013 | 3 / 5 (2) | 2
- Anything you can do I can do better: Neuromolecular foundations of the superiority illusion (Update) Apr 02, 2013 | 4.5 / 5 (11) | 5
- The visual system as economist: Neural resource allocation in visual adaptation Mar 30, 2013 | 5 / 5 (2) | 9
- Separate lives: Neuronal and organismal lifespans decoupled Mar 27, 2013 | 4.9 / 5 (8) | 0
- Sizing things up: The evolutionary neurobiology of scale invariance Feb 28, 2013 | 4.8 / 5 (10) | 14
Classical and Quantum Mechanics via Lie algebras
Apr 15, 2011 I'd like to open a discussion thread for version 2 of the draft of my book ''Classical and Quantum Mechanics via Lie algebras'', available online at http://lanl.arxiv.org/abs/0810.1019 , and for the...
- More from Physics Forums - Independent Research
More news stories
High blood glucose is associated with poor outcomes in hospitalized patients, and use of intensive insulin therapy (IIT) to control hyperglycemia is a common practice in hospitals. But the recent evidence does not show a ...
Other 9 hours ago | not rated yet | 0
Two out of five medical students have an unconscious bias against obese people, according to a new study by researchers at Wake Forest Baptist Medical Center. The study is published online ahead of print in the Journal of ...
Other 15 hours ago | not rated yet | 0
Nanyang Technological University's (NTU) new medical school will be pioneering the use of plastinated bodies for medical education in Singapore.
Other May 23, 2013 | not rated yet | 0
A 2012 survey of internal medicine residents at Massachusetts General Hospital (MGH) – one of the nation's leading teaching hospitals – found that more than half rated the training they had received in addiction and other ...
Other May 22, 2013 | 5 / 5 (1) | 0
Early use of tracheostomy for mechanically ventilated patients not associated with improved survival
For critically ill patients receiving mechanical ventilation, early tracheostomy (within the first 4 days after admission) was not associated with an improvement in the risk of death within 30 days compared to patients who ...
Other May 21, 2013 | not rated yet | 0
(Medical Xpress)—A new study by researchers in the US has shown that an ancient virus can be modified to help in the fight against the simian immunodeficiency virus SIV, which is the equivalent in monkeys ...
50 minutes ago | not rated yet | 0 |
How can healthy people who hear voices help schizophrenics? Finding the answer for this is at the centre of research conducted at the University of Bergen.
41 minutes ago | 3 / 5 (1) | 0
Researchers from London's Kingston University have begun a two-year study which could help prolong the lives of people with colorectal tumours.
31 minutes ago | not rated yet | 0
New research presented today shows that formation of new neurons in the hippocampus - a brain region known for its importance in learning and remembering - could cause forgetting of old memories by causing a reorganization ...
21 minutes ago | not rated yet | 0
Ernie Pyle – an iconic war correspondent in World War II – reportedly said "There are no atheists in foxholes." A new joint study between two brothers at Cornell and Virginia Wesleyan found that only ...
24 minutes ago | not rated yet | 0
(Medical Xpress)—Research by Stanford scholar Emma Seppala at the Center for Compassion and Altruism Research and Education found that post-traumatic stress disorder decreased in veterans who participated ...
51 minutes ago | not rated yet | 0