Autistic adults report significant shortcomings in their health care

December 6, 2012

Researchers at Oregon Health & Science University (OHSU) have found that adults with autism, who represent about 1 percent of the adult population in the United States, report significantly worse health care experiences than their non-autistic counterparts.

"Like other adults, adults on the autism spectrum need to use health care services to prevent and treat illness. As a primary care provider, I know that our health care system is not always set up to offer high-quality care to adults on the spectrum; however, I was saddened to see how large the disparities were. We really need to find better ways to serve them," said Christina Nicolaidis, M.D., M.P.H., principal investigator and associate professor of medicine (general internal medicine and geriatrics) at OHSU.

The study, published in the Journal of General Internal Medicine, was conducted by the Academic Autistic Spectrum Partnership in Research and Education (AASPIRE), an academic-community partnership where academic investigators, autistic adults and other community members work together throughout the project.

Nicolaidis and colleagues surveyed 209 autistic adults and 228 non-autistic adults through a secure registration system for online studies. Autistic adults reported greater unmet health care needs, higher use of the emergency department, and lower rates of preventive services such as Pap smears. They also reported poorer satisfaction with provider communication and lower comfort in navigating the health care system or managing their health.

"While I am discouraged by the findings, I am also encouraged by the direct involvement of the autistic community in all parts of this project. In order to ensure research that is truly useful to autistic adults, it is critical to involve us directly in the process," noted Dora Raymaker, AASPIRE's community co-director.

The study also has important implications related to changes in the newly released Diagnostic and Statistical Manual of Mental Disorders (DSM-V), which combined Autistic Disorder, Asperger's Disorder, and Pervasive Developmental Disorder Not Otherwise Specified into one new category of Autism Spectrum Disorder. There has been considerable controversy over the new criteria, with some studies predicting a significant reduction in the number of people who will meet criteria, especially among those with Asperger's disorder or without intellectual disabilities.

"The existence of health care disparities in our sample, most of whom had diagnoses of Asperger's and/or high educational attainment, highlights the possible negative consequences of stricter criteria. Not having a diagnosis may deprive patients and their providers of insights, strategies, and accommodations to improve health care experiences," explained Nicolaidis.

Explore further: DSM-5 proposed criteria for autism spectrum disorder diagnosis

Related Stories

DSM-5 proposed criteria for autism spectrum disorder diagnosis

January 23, 2012

(Medical Xpress) -- The American Psychiatric Association (APA) has proposed new diagnostic criteria for the fifth edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM-5) for autism. While final decisions ...

Autism expert on proposed changes to autism diagnosis

January 23, 2012

(Medical Xpress) -- Autism has been the subject of much discussion recently due to proposed changes in diagnostic criteria, as laid out in the forthcoming fifth edition of the Diagnostic and Statistical Manual of Mental Disorders ...

Recommended for you

Autism biomarker seen as boon for new treatments

January 11, 2017

Researchers at the UCLA Center for Autism Research and Treatment have identified a signature brain-wave pattern for children with autism spectrum disorder related to a genetic condition known as Dup15q syndrome. The research ...

Lab confirms vitamin D link to autism traits

December 14, 2016

Researchers at The University of Queensland's Queensland Brain Institute have found a link between vitamin D deficiency in pregnancy and increased autism traits.

Neuromotor problems at the core of autism, study says

December 12, 2016

Rutgers neuroscientists have established that problems controlling bodily movements are at the core of autism spectrum disorders and that the use of psychotropic medications to treat autism in children often makes such neuromotor ...

0 comments

Please sign in to add a comment. Registration is free, and takes less than a minute. Read more

Click here to reset your password.
Sign in to get notified via email when new comments are made.