First free comprehensive data facility for patient-centered care
The first free and openly-available comprehensive data resource for international measures relating to patient experience and person centred care has been launched, providing a 'one-stop' website for commissioners, health managers, researchers and others.
Measures for Person Centred Coordinated Care has been compiled by researchers from Plymouth University Peninsula Schools of Medicine and Dentistry. The project has been supported by NHS England, the National Institute for Health Research Collaboration for Applied Health Research and Care South West Peninsula (NIHR PenCLAHRC), the South West Academic Health Science Network and the Royal Devon and Exeter NHS Foundation Trust.
The aim of the project is to deliver a portfolio of intelligence about measures for Person Centred Coordinated Care ("P3C") for people with Long-Term Conditions (LTCs), multiple-LTCs, and those at the End of their Life (EoL). One component of this project is to provide a compendium of measures - defined as Patient Reported Outcome Measures (PROMs) and Patient Reported Experience Measures (PREMs) - that can be utilised within programmes that aim to deliver or evaluate P3C in target populations.
The website provides a user-friendly front-end to that compendium, with the aim to act as a gateway to measures for person centred care. The other key element of this project includes a guide developed to support the delivery and evaluation of Person Centred Coordinated Care which will be launched this autumn.
The website can be visited at http://www.pc3.org.uk.
Dr Helen Lloyd from Plymouth University led the team who delivered the project. Helen, NIHR PenCLAHRC Senior Research Fellow, said: "Data relating to the patient experience and patient centred care sit at the heart of care policy and delivery, yet until now the resources required by commissioners, managers and those carrying out research to improve and enhance services have been disparate and disjointed. Measures for Person Centred Coordinated Care brings together the vast majority of measures and data 'under one roof', with the intention of making it easier to source information for those who need it."
