Drugs used to treat rare conditions are earning pharmaceutical companies almost as much as those marketed to the general public, according to a researcher at West Virginia University. Sean Tu, a College of Law professor found ...
Jun 12, 2023
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A global study of pandemic deaths led by researchers at The Australian National University (ANU) has revealed why some countries have seen a greater number of children who have lost one or both parents due to COVID-19.
Aug 31, 2022
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Only about one in every 170 children take them. But 'orphan drugs' accounted for 1 in every 15 private insurance dollars spent on children's health care in the United States in 2018, according to a new study. That's up 65% ...
Oct 6, 2020
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A Western Sydney University expert says there is an unknown population of older people in Australia who are friendless and alone, and are uniquely impacted by the COVID-19 pandemic.
Aug 18, 2020
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A tissue bioengineering product based on patient cells that have been corrected using genomic editing has been designated as an orphan drug by the European Medicines Agency (EMA) for the treatment of Recessive Dystrophic ...
May 7, 2020
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The number of treatments for rare diseases affecting children has increased, a new study suggests. But federal incentives intended to encourage drug development for rare conditions are being used more often to expand the ...
Mar 3, 2020
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The Food and Drug Administration has failed to ensure that drugs given prized rare-disease status meet the intent of a 35-year-old law, federal officials revealed in a report Friday.
Dec 1, 2018
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Scientists have long known that cancer can hijack a cell's existing regulatory circuitry and transform healthy cells into deadly malignancies. But a new discovery from UC San Francisco demonstrates that cancer is more than ...
Nov 8, 2018
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Pharmaceutical companies developing Orphan Drugs are increasingly partnering with direct-to-consumer (DTC) genetic testing firms to identify individuals with rare diseases, in a trend that is raising concerns related to privacy, ...
Sep 27, 2017
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"It was the best of times, it was the worst of times" is a familiar quote from the opening of Charles Dickens' "A Tale of Two Cities," but the phrase is also applicable to the specialty drug market in the United States today.
Jul 6, 2017
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