News tagged with rare genetic condition

Terminally-ill British baby Charlie Gard dies

Charlie Gard, the terminally-ill British baby whose plight drew sympathy from Pope Francis and US President Donald Trump and sparked a debate about medical ethics, died on Friday, his mother said.

Jul 28, 2017
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How the media can help protect people with albinism

Albinism is a rare genetic condition which affects the pigment in the eyes, hair and skin. In the US about 1 person in 17,000 has albinism. In Africa the prevalence is estimated to range between 1 in 1100 to 1 in 15,000. ...

Jun 13, 2017
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Bangladesh 'Tree Man' sees hope after 16 surgeries

A Bangladeshi father dubbed the "tree man" because of the bark-like warts that once covered his body will soon be able to leave hospital after groundbreaking treatment for one of the world's rarest diseases.

Jan 06, 2017
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