NIH creates network to tackle mysterious diseases

by Lauran Neergaard

The government is expanding its "mystery disease" program, funding a network at six universities to help diagnose patients' super-rare diseases.

The National Institutes of Health has evaluated hundreds of these cold-case in its campus research hospital as part of a since 2008. Demand is so great, there's a waiting list.

So on Tuesday, the agency announced the NIH Undiagnosed Diseases Network, a four-year, $43 million initiative to bring more doctor-detectives on board. The goal is to at least put a name to more patients' puzzling symptoms, and then eventually find treatments.

The centers include: Baylor College of Medicine in Houston, Duke University, Stanford University, University of California, Los Angeles, Vanderbilt University and the Harvard University teaching hospitals Brigham and Women's, Massachusetts General and Boston Children's.

Related Stories

Gene scans solve mystery diseases in kids, adults

date Oct 02, 2013

They were mystery diseases that had stumped doctors for years—adults with strange symptoms and children with neurological problems, mental slowness or muscles too weak to let them stand. Now scientists say they were able ...

NIH admits a dozen critically ill despite shutdown

date Oct 09, 2013

The government's partial shutdown has halted most enrollment into research studies at the National Institutes of Health's famed hospital. But some desperately ill patients have managed to get in.

Recommended for you

Norway ranks as world's best place to be a mother

date 3 hours ago

Norway ranks as the world's best place to be a mother, well ahead of the United States which dropped to the 33rd spot in the annual scorecard released by Save the Children on Monday.

Puerto Rico authorizes medical marijuana

date 14 hours ago

Puerto Rico's Governor Alejandro Garcia Padilla has authorized the use of marijuana for medicinal use, in a surprise move after the US possession's legislature failed to act on the issue.

User comments

Please sign in to add a comment. Registration is free, and takes less than a minute. Read more

Click here to reset your password.
Sign in to get notified via email when new comments are made.