NIH creates network to tackle mysterious diseases

by Lauran Neergaard

The government is expanding its "mystery disease" program, funding a network at six universities to help diagnose patients' super-rare diseases.

The National Institutes of Health has evaluated hundreds of these cold-case in its campus research hospital as part of a since 2008. Demand is so great, there's a waiting list.

So on Tuesday, the agency announced the NIH Undiagnosed Diseases Network, a four-year, $43 million initiative to bring more doctor-detectives on board. The goal is to at least put a name to more patients' puzzling symptoms, and then eventually find treatments.

The centers include: Baylor College of Medicine in Houston, Duke University, Stanford University, University of California, Los Angeles, Vanderbilt University and the Harvard University teaching hospitals Brigham and Women's, Massachusetts General and Boston Children's.

5 /5 (2 votes)
add to favorites email to friend print save as pdf

Related Stories

Gene scans solve mystery diseases in kids, adults

Oct 02, 2013

They were mystery diseases that had stumped doctors for years—adults with strange symptoms and children with neurological problems, mental slowness or muscles too weak to let them stand. Now scientists say they were able ...

NIH admits a dozen critically ill despite shutdown

Oct 09, 2013

The government's partial shutdown has halted most enrollment into research studies at the National Institutes of Health's famed hospital. But some desperately ill patients have managed to get in.

Recommended for you

How can we help manage eating disorders?

2 hours ago

These guidelines are for the clinical management of eating disorders They are intended to provide current evidence based guidance on the assessment and treatment of people with eating disorders by psychiatrists and other ...

More aging boomers, but fewer doctors to care for them

6 hours ago

By 2030, the last of the Baby Boomer generation will have turned 65 years old, putting the population of "senior boomers" in the United States at approximately 71 million. Currently, only about 7,000 certified geriatricians – ...

User comments

Please sign in to add a comment. Registration is free, and takes less than a minute. Read more

Click here to reset your password.
Sign in to get notified via email when new comments are made.