Friends and social networks valued by heart failure patients and health care providers

April 29, 2015, American Heart Association

Patients consult family members for advice about their heart failure symptoms; while health care providers engage in social networks to improve communication and heart failure care, according to separate studies presented at the Quality of Care and Outcomes Research 2015 Scientific Sessions.

In a study from Kansas and Missouri (abstract 125), researchers sought to understand patients' perceptions of symptoms, and how and when they decide to seek professional care. After interviewing 90 patients, researchers found more than 80 percent said they talked to people from their social networks - a spouse, life partner, or adult children - about their symptoms prior to hospitalization.

"Symptoms in chronic illnesses are often subtle in onset, wax and wane over time, and may not be particularly bothersome until patients are acutely ill. So, a symptomatic person might first discuss his or her symptoms with close and trusted people from their social networks - namely, and friends - to garner their opinions," said Katherine M. Reeder, Ph.D., RN, lead author of the study on heart failure self-management and research assistant professor at Goldfarb School of Nursing at Barnes-Jewish College, St Louis, Missouri.

Researchers also found:

  • Most often (76 percent), lay consultants attributed patients' symptoms to heart problems.
  • About 77 percent of patients received advice from lay consultants about what to do for symptoms, and in 83 percent of cases that advice was to seek medical care.
  • Women consulted with about their symptoms significantly more often than men (48 percent vs. 8 percent).

"Our findings shed light on the importance of patients' interactions with persons from their social network," said Reeder who is also adjunct assistant professor at Kansas University School of Medicine in Kansas City, Kansas. "Better understanding the post-discharge environment context of self-care, including social interactions about health concerns is needed to enhance effectiveness of healthcare provider conversations with patients and families, as well as to optimize self-management interventions, improve outcomes, and reduce hospital readmissions," she said.

In a separate independent study from California (abstract 241), researchers evaluated the Department of Veterans Affairs' Heart Failure (HF) Provider Network, a network of healthcare providers who share heart failure best practices, collaborate and exchange ideas on evidence-based programs, and share resources to improve heart failure care. More than 1,200 multi-disciplinary/multi-level healthcare providers from throughout the VA Health Care System have participated as members of the HF Network. They include leadership from VA Central Office, regional hospitals, chiefs of cardiology, staff physicians, nurses, quality managers, pharmacists, researchers and others. The HF network operates via bi-monthly web-based meetings/conference calls, an annual in-person meeting, emails and web-based surveys.

"Social networks offer an effective platform for the implementation of evidence-based practices to improve the quality of care from local, regional to national levels. Members perceive the social network as a valuable forum for the exchange of both explicit and tacit knowledge regarding effective activities to implement best evidence-based practices and improve clinical care," said Anju Sahay, Ph.D., lead author of the study and Implementation Research Coordinator for the VA Chronic Health Failure QUERI Center in Palo Alto, California.

Researchers gathered 219 survey and 25 interview responses from network members. They found that members participated in the HF Network to stay informed and maintain or enhance their knowledge in . Researchers also found:

  • 90 percent of members reported that the HF Network helped them establish collaborations and/or network among members.
  • 63.8 percent of members also reported that their participation in the HF Network provided them with names of contacts for networking and potential problem solving.
  • 94 percent of the members found attending the web-based meetings and conference calls helpful in learning about barriers and facilitators in setting up or running HF programs.

Sahay said this social network expands the community of medical practitioners and other providers by offering valuable perspectives that can improve research-based care based on the latest scientific evidence. The HF Network is also used to implement interventions that can lead to improved quality of care.

Researchers said the next step is to understand the concept of a community-of-practice within the social network, then leverage this connectedness to recognize the importance of professional norms, consensus and team care to facilitate shared knowledge and quality improvement for clinical practices.

Explore further: Low health literacy linked to heart failure deaths after hospitalization

Related Stories

Low health literacy linked to heart failure deaths after hospitalization

April 29, 2015
People who have difficulty understanding health information are more likely to die following hospitalization for acute heart failure, according to research published in the Journal of the American Heart Association.

Doctors reluctant to discuss end-of-life care with heart failure patients

June 4, 2014
Healthcare providers are reluctant to discuss end-of-life care with heart failure patients and their families because they feel uncomfortable broaching the topic or lack time, according to a new study presented at the Quality ...

Depression raises risk of poor outcomes for blacks with heart failure

April 21, 2015
Among black heart failure patients, moderate depression may increase the risk of heart failure patients being hospitalized or dying, according to research in the American Heart Association journal Circulation: Heart Failure.

Screenings, targeted care reduce heart failure in at-risk patients

March 12, 2013
For at-risk patients, a simple screening and management program can be effective in preventing heart failure, according to research presented today at the American College of Cardiology's 62nd Annual Scientific Session.

Variation in use of imaging tests in newly diagnosed heart failure

June 23, 2014
(HealthDay)—Cardiovascular testing in patients with newly diagnosed heart failure (HF) varies among U.S. hospitals, according to research published online June 18 in the Journal of the American College of Cardiology: Cardiovascular ...

Researchers develop new tool to eliminate 30-day hospital readmissions in heart failure patients

March 10, 2013
Researchers at the Intermountain Heart Institute at Intermountain Medical Center have developed an innovative tool designed to eliminate 30-day hospital readmissions for heart failure patients and improve the quality of medical ...

Recommended for you

Can stem cells help a diseased heart heal itself? Researchers achieve important milestone

December 14, 2018
A team of Rutgers scientists, including Leonard Lee and Shaohua Li, have taken an important step toward the goal of making diseased hearts heal themselves—a new model that would reduce the need for bypass surgery, heart ...

Higher risk of heart attack on Christmas Eve

December 12, 2018
The risk of heart attack peaks at around 10pm on Christmas Eve, particularly for older and sicker people, most likely due to heightened emotional stress, finds a Swedish study in this week's Christmas issue of The BMJ.

Your weight history may predict your heart failure risk

December 12, 2018
In a medical records analysis of information gathered on more than 6,000 people, Johns Hopkins Medicine researchers conclude that simply asking older adult patients about their weight history at ages 20 and 40 could provide ...

Age is the biggest risk for heart disease, but lifestyle and meds have impact

December 12, 2018
Of all the risk factors for heart disease, age is the strongest predictor of potential trouble.

New understanding of mysterious 'hereditary swelling'

December 12, 2018
For the first time ever, biomedical researchers from Aarhus University, Denmark, report cellular defects that lead to a rare disease, hereditary angioedema (HAE), in which patients experience recurrent episodes of swelling ...

Researchers have found that incidence of heart failure was around two-fold higher in people with diabetes

December 11, 2018
Researchers have found that incidence of heart failure was around two-fold higher in people with diabetes.


Please sign in to add a comment. Registration is free, and takes less than a minute. Read more

Click here to reset your password.
Sign in to get notified via email when new comments are made.