Major disabilities research project highlights need for change

May 25, 2018, University of Bristol
Major disabilities research project highlights need for change
Credit: University of Bristol

The daily lives of disabled people are impacted by 'unhelpful, exclusionary or downright abusive' practices, according to a major research project looking at issues facing those with disabilities in the UK today.

Getting Things Changed is the largest research project of its kind, involving 448 participants who gave insights into the many barriers faced by disabled people and indicated some of the changes which need to happen.

The research, led by the University of Bristol and carried out over three years, was fuelled by concerns that policy and law do not always translate into .

It took place at a time when austerity and cuts to social care budgets have hit disabled people hardest, with local authorities driven by budget cuts rather than the needs of those it should be helping.

The findings from Getting Things Changed, being presented at a conference held in Bristol today [25 May], demonstrate that many public institutions such as hospitals or universities aren't providing 'reasonable adjustments' for disabled people as outlined in the Equality Act 2010.

Research highlighted that disabled people and those working with them felt disability was still treated as a negative category in universities, the media, and even in hospitals.

Researchers have made a series of recommendations for policy makers and practitioners. These include:

  • All public institutions must have systems in place, preferably led by disabled people, to monitor and report on how they're adhering to the Equality Act 2010.
  • Disability needs to be valued as part of increasing diversity within organisations, and to be seen as a way of promoting better ways of doing things.
  • Informal, more relaxed settings are often the key to better practices, for instance in personal support but also at universities, within hospital waiting rooms, or in dementia groups.

The scope of the research was wide, covering a range of situations such as groups for people with dementia, music education in special schools, representation of disabled people on TV and in the media, hospital care, and support for parents with learning difficulties.

Professor Val Williams, from the Norah Fry Centre for Disability Studies at the University of Bristol, led the project and said: "We have tried to unravel some of the culture and practices which exclude or 'misfit' disabled people. All too often, practices become stuck in ways which are unhelpful, exclusionary or downright abusive for them.

"While we found evidence of some positive change, thanks in part to technology, there still needs to be a shift in values – in public institutions and within society as a whole.

"For example, are being driven by the need to cut social care budgets rather than engaging in meaningful communication with disabled people, and we see how this creates a climate where rigid processes and practices become the unquestioned norm.

"What we have learnt through our research is that there's a strong need to see afresh what is often taken for granted. Institutions create practices which are often driven by a power differential between 'expert' and lay person, but these practices can become more equalising by a relaxing of formality.

"Disabled people should be seen and valued as innovators. Introducing new forms of technology and ways of doing things which will ultimately benefit the whole of society by making it more inclusive."

Getting Things Changed found countless practices which exclude or marginalise disabled people, both in the material infrastructure of buildings as well as the ways in which people interact.

For instance, people with dementia might rely on familiar, clear signage to find their way in and out of a building, or the facilities in it, but they also need people who will give them time to communicate or understand how to wait for a response in a respectful way.

In hospitals, disabled people are not always able to access services easily; their information or communication needs were not always met or physical needs, such as the use of wheelchairs, were difficult for hospitals to accommodate.

Sue Bott CBE, Deputy Chief Executive of Disability Rights UK, said: "Disability Rights UK were pleased to be part of this project. It's one thing to talk about the rights disabled people have but quite another to find ways to put those rights into practice.

"This research provides the evidence that many could do much better to promote the rights of disabled people and support us to fulfil our potential.

"Why should we continually have to fight for our rights? It's a wake-up call to public bodies to put in place practices and processes that will guarantee our rights."

Explore further: Disabled people reveal their experiences of social care

Related Stories

Disabled people reveal their experiences of social care

January 19, 2017
At a time when Social Care in England is at a 'tipping point', according to the Care Quality Commission, it is vital that local authorities find ways of working together with people who use social care services. With that ...

Study finds care inadequacies in disabled pregnancy, childbirth and early parenting

March 20, 2018
A study by the University of Liverpool and Bournemouth University (BU) has found that some disabled women are not receiving appropriate personalised care during pregnancy, childbirth and early parenting.

Research finds people with intellectual disabilities not receiving support for big decisions

March 7, 2018
Researchers from the University of Birmingham have found that people with intellectual disabilities receive much lower levels of support and guidance when making difficult decisions, especially those related to legal issues ...

Charity echoes Ofsted concerns on safeguarding disabled children

August 24, 2012
A report that warns that disabled children in England need better protection against neglect or abuse has been welcomed by a national charity. 

Personal assistance relationships are complex and need support, study finds

June 28, 2017
Personal assistance relationships are usually empowering and flexible for both employer and workers, but can become emotionally fraught and even wounded, according to a report launched today.

Recommended for you

Accurate measurements of sodium intake confirm relationship with mortality

June 21, 2018
Eating foods high in salt is known to contribute to high blood pressure, but does that linear relationship extend to increased risk of cardiovascular disease and death? Recent cohort studies have contested that relationship, ...

Fans of yoga therapy have yet to win over doctors

June 21, 2018
Yoga practitioners often tout the unique health benefits of the ancient discipline—from relieving stress and pain to improving vascular health—but most doctors remain sceptical in the absence of hard proof.

Fruit and vegetables linked to changes in skin colour, new research finds

June 21, 2018
Skin colour in young Caucasian men is strongly linked to high levels of fruit and vegetable consumption, new research by Curtin University has found.

What a pain: The iPad neck plagues women more

June 20, 2018
Is your iPad being a literal pain in the neck?

Medicaid work requirements and health savings accounts may impact people's coverage

June 20, 2018
Current experimental approaches in Medicaid programs—including requirements to pay premiums, contribute to health savings accounts, or to work—may lead to unintended consequences for patient coverage and access, such ...

Introduction of alcohol found to adversely impact fertility rates in hunter-gatherer community

June 19, 2018
Fernando Ramirez Rozzi, a research director with the French National Centre for Scientific Research has found that the introduction of alcohol to a Baka pygmy hunter-gatherer society caused fertility rates to fall. In his ...


Please sign in to add a comment. Registration is free, and takes less than a minute. Read more

Click here to reset your password.
Sign in to get notified via email when new comments are made.