The World Health Organization said Friday that there was a "likely causal association" between coronavirus vaccines using mRNA technology and "very rare" heart inflammations, but the benefits still outweigh the risks.
Jul 10, 2021
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Pediatric melanoma is a rare disease with only around 400 cases diagnosed in the United States every year. To better understand this disease and how best to treat it, St. Jude Children's Research Hospital scientists created ...
Jul 6, 2021
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US health authorities plan to update official guidance about administering mRNA COVID vaccines to adolescents and young adults after finding a likely link to rare cases of heart inflammation, but say the overall benefits ...
Jun 24, 2021
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Patients who, perhaps unbeknownst to their health care providers, are in need of genetic testing for rare undiagnosed diseases can be identified en masse based on routine information in electronic health records (EHRs), a ...
Jun 3, 2021
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The University of Oulu's Cardiology Research Group identified several rare genetic variants in victims of sudden death caused by hypertension- or obesity-related cardiac hypertrophy. The findings suggest that, in addition ...
Jun 2, 2021
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Jordan Janz knew his gamble on an experimental gene therapy for his rare disease might be paying off when he returned to work and a friend sniffed him.
Jun 2, 2021
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The Treatabolome project is a research initiative to develop a freely available, interoperable online platform dedicated to disseminating rare disease and gene-specific treatment information to healthcare professionals regardless ...
Jun 1, 2021
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Rare disease experts detail the first results of an unprecedented collaboration to diagnose people living with unsolved cases of rare diseases across Europe. The findings are published today in a series of six papers in the ...
Jun 1, 2021
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The parents of children with rare diseases face exceptional circumstances which influence their role as parents. Sometimes, the role of caregivers is added to that of parents. On other occasions, especially with the most ...
May 27, 2021
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A rare mutation that causes Parkinson's disease-like symptoms interrupts the flow of dopamine in the brain, suggests a study in fruit flies published today in eLife.
May 25, 2021
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