Distress over false-positive cystic fibrosis screen not lasting

Distress over false-positive cystic fibrosis screen not lasting

(HealthDay)—Mothers of infants with false-positive (FP) newborn bloodspot screening (NBS) results for cystic fibrosis (CF) report immediate distress, although these concerns are not reflected in psychosocial response measures, according to a study published online Aug. 2 in Pediatrics.

Robin Z. Hayeems, Ph.D., from the Hospital for Sick Children in Toronto, and colleagues used a mixed-methods cohort design to obtain prospective self-report data from mothers of infants with FP CF NBS results two to three months after confirmatory testing and from a sample of mothers of screen negative infants. Experience and psychosocial response were assessed in questionnaires completed by 134 mothers of FP infants and 411 controls; 54 mothers of FP infants were interviewed.

The researchers found that psychosocial distress was not detected in newborns or one year later based on selected psychosocial response measures (P > 0.05). During notification of the positive results, and in the follow-up testing period, mothers recalled distress related to fear of chronic illness; however, they valued the screening system of care for alleviating concerns.

"Although immediate was reported among of FP , selected psychometric tools did not detect these concerns," the authors write. "The screening system reflected herein may be a model for NBS programs working to minimize FP-related psychosocial harm."


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Citation: Distress over false-positive cystic fibrosis screen not lasting (2016, August 8) retrieved 18 January 2020 from https://medicalxpress.com/news/2016-08-distress-false-positive-cystic-fibrosis-screen.html
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