Nine out of ten want to know their brain disease risk

Nine out of ten want to know their brain disease risk
Comparison between participants from research registries and the remainder from same country. The graph shows how the participants recruited from research registries Join Dementia Research and Hersenonderzoek answered relevant questions compared with other respondents from the same country (UK and NL others). Credit: Frontiers in Public Health (2022). DOI: 10.3389/fpubh.2022.998302

Would you take a simple brain health test to learn about your risk of developing a brain disease if you could? According to the global brain health survey, 91% of those questioned would.

We asked this question to more than 27,500 people in the global survey conducted by the Lifebrain project. The survey is led by the Norwegian Institute of Public Health in collaboration with the University of Oslo.

The main findings were:

  • 91% of respondents would definitely or probably take a to learn about the risk of developing a brain disease.
  • 86% would do so even if the disease could not be prevented or treated.

The findings have been published in Frontiers in Public Health.

Slowing down brain disease

For most people (over 95%) their main reason for taking a brain health test is to be able to slow down the development of a brain disease by seeking professional help and changing their lifestyle if they were at risk.

"It is surprising that so many people are willing to be tested for future brain diseases, even though it is not always possible to delay onset or cure them, such as Alzheimer's disease. However, this finding shows that people strongly believe that lifestyle affects brain health," says Dr. Rebecca Bruu Carver, lead author of the study at the Norwegian Institute of Public Health.

Test accuracy is important

Eight out of ten believe a brain health test should be reliable and give an accurate result. Today, it is possible to test several aspects of your brain health with various methods, such as gene tests, brain scans, blood tests and cognitive tests.

For example, genetic tests can predict the risk of developing Huntington's disease and some forms of Alzheimer's disease, but otherwise there are very few genetic tests for brain diseases. There is no simple test to provide an overall measure of your brain health.

"Although simple brain health tests are not yet available, we see an increase in commercial genetic tests for many conditions, with varying predictive power. Since this study shows there is high public interest in brain health testing, it is important that people understand the limitations of such tests," says Carver.

She believes it is important that give people the necessary information and follow-up if these tests become available.

What is brain health?

The term brain health has been adopted in the last ten years. Good brain health is about mental well-being and the ability to remember, learn, plan and concentrate.

Brain health is affected by various diseases and disorders. One in three will develop a brain disease or disorder during their lifetime, such as dementia, stroke, Parkinson's disease, depression, anxiety or schizophrenia. Research shows that it is possible, to some degree, to prevent brain diseases through diet, physical activity and sleep.

"It is positive that so many respondents would change their lifestyle if they discovered they are at risk of developing a brain disease. However, we know from previous research that what people say and what they actually do can be two different things," says Carver.

About the study

The brain health survey "The Global Brain Health Survey" has been part of the EU research project "Lifebrain" in the Horizon2020 program and was carried out in collaboration with the University of Oslo. The questionnaire was available in 14 languages and the answers came from participants in 76 countries.

Participants in the study were asked to consider a hypothetical brain health test that would tell them about their risk of developing an unspecified . Such a test is not currently available.

Most participants were from the UK (37%), the Netherlands (25%) and Norway (13%). Most were over 40 (83%), were female (71%) or had a university degree (71%).

43% of participants had previously taken part in brain health research, as more than half of the respondents were recruited via research registers. Many were therefore already interested in health and the sample is therefore not representative of the general population.

More information: Rebecca B. Carver et al, People's interest in brain health testing: Findings from an international, online cross-sectional survey, Frontiers in Public Health (2022). DOI: 10.3389/fpubh.2022.998302

Journal information: Frontiers in Public Health

Citation: Nine out of ten want to know their brain disease risk (2022, November 4) retrieved 31 May 2023 from
This document is subject to copyright. Apart from any fair dealing for the purpose of private study or research, no part may be reproduced without the written permission. The content is provided for information purposes only.

Explore further

People know little about brain health but want to know more


Feedback to editors