Charlie Gard, the terminally-ill British baby whose plight drew sympathy from Pope Francis and US President Donald Trump and sparked a debate about medical ethics, died on Friday, his mother said.
Jul 28, 2017
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The parents of Charlie Gard, whose battle to get their critically ill baby experimental treatment stirred international sympathy and controversy, dropped their legal effort Monday, saying tearfully that it was time to let ...
Jul 24, 2017
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When Audrey Lapidus' 10-month old son, Calvin, didn't reach normal milestones like rolling over or crawling, she knew something was wrong.
Jul 19, 2017
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Albinism is a rare genetic condition which affects the pigment in the eyes, hair and skin. In the US about 1 person in 17,000 has albinism. In Africa the prevalence is estimated to range between 1 in 1100 to 1 in 15,000. ...
Jun 13, 2017
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The European Court of Human Rights on Tuesday ordered the British government to keep providing a baby with a rare genetic disease with "appropriate" treatment after a London High Court ruling that he should be allowed to ...
Jun 13, 2017
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British doctors can allow a baby to "die with dignity" despite his parents' wish to take him to the US for treatment, a high court judge ruled on Tuesday.
Apr 11, 2017
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A Bangladeshi father dubbed the "tree man" because of the bark-like warts that once covered his body will soon be able to leave hospital after groundbreaking treatment for one of the world's rarest diseases.
Jan 6, 2017
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In individuals with a rare genetic disorder that affects blood vessels, arteries and veins develop abnormal connections, causing bleeding in the skin, nose, and other organs. In most cases, the condition—hereditary hemorraghic ...
Nov 30, 2016
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Spinal muscular atrophy (SMA) is a disease that causes progressive degeneration in the nerve cells that control muscles, thereby causing muscle weakness and eventually death. SMA affects approximately 200,000 people in the ...
May 5, 2016
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What started as a search for answers for patients suffering from a rare genetic condition called neonatal progeroid syndrome (NPS) that keeps the body from accumulating fat, among other symptoms, has now turned into a discovery ...
Apr 14, 2016
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