Electronic data methods research seeks to build a 'learning health care system'

June 25, 2012

Researchers participate in the Electronic Data Methods (EDM) Forum to maximize shared experiences and learning for using electronic clinical data to improve medical care and making informed health decisions. A July supplement to Medical Care is a special 'EDM Forum' issue, highlights key issues researchers are facing, and innovative approaches that have been developed to build the infrastructure and conduct research using electronic clinical data. The journal is published by Lippincott Williams & Wilkins, a part of Wolters Kluwer Health.

The papers in the EDM Forum supplement share the experience and knowledge gained by eleven research teams, focusing on developing electronic clinical data systems to support comparative effectiveness research (CER) and patient-centered outcomes research (PCOR). The EDM forum supplement is freely available on the journal website.

New Systems for Using Clinical Data to Inform and Improve Patient Care

"These efforts have the shared goal of developing innovative strategies to address challenges in traditional research studies and data sources in order to generate evidence and help build a learning health system that can improve patient outcomes," comments Erin Holve, PhD, MPH, MPP of AcademyHealth, the leading national organization serving the fields of health services and policy research.

AcademyHealth leads the EDM Forum to "identify, synthesize, and share lessons learned" from eleven research projects, funded by the U.S. Agency for Health Research and Quality. The goal of the three-year project is to demonstrate proof of concept in using electronic clinical data to answer important questions about which medical treatments are most effective (CER) and to provide evidence that patients and professionals can use to make informed health care decisions (PCOR). The EDM Forum is supported by the Agency for Healthcare Research and Quality (AHRQ) through the American Recovery & Reinvestment Act of 2009, Grant U13 HS19564-01.

The supplement articles address three main areas:

  • Analytic methods—the critical challenges of conducting CER, such as ensuring the quality of data in research networks and selecting appropriate groups of patients for studies of specific research questions.
  • Clinical informatics—practical issues related to gathering and collecting electronic clinical data, including building networks of shared data.
  • Data governance—issues related to using data from different sources, including measures to protect patien5t safety and privacy are protected.

The ultimate goal is to create a "learning health system," using routine data to make care ever more efficient and effective. Dr Holve adds, "Highlighting lessons learned from the ambitious and diverse projects participating in the EDM Forum is an exciting challenge on its own; the PROSPECT, DRN, and Enhanced Registry projects are big, complex scientific efforts that require the coordination and collaboration of diverse scientific disciplines and care delivery organizations across the country"

The EDM Forum promotes sharing of information and expertise among researchers and with health organizations, agencies, and other interested stakeholders. In addition to the supplement in , the EDM Forum shares information through an open access website at http://www.edm-forum.org.

Explore further: Journal supplement presents strategies for introducing health care delivery innovation

Related Stories

Journal supplement presents strategies for introducing health care delivery innovation

December 8, 2011
The health care system in the United States faces numerous challenges: how to bring innovation from the laboratory to the bedside, how to ensure more equitable use of medical services and, in a time of increasing financial ...

Improving care of HIV-positive young men of color who have sex with men

August 16, 2011
To overcome the unique challenges faced by a growing segment of the HIV-positive population—young men of color who have sex with men (YMSM of Color)—novel intervention strategies for providing HIV testing, medical ...

Recommended for you

New shoe makes running 4 percent easier, 2-hour marathon possible, study shows

November 17, 2017
Eleven days after Boulder-born Shalane Flanagan won the New York City Marathon in new state-of-the-art racing flats known as "4%s," University of Colorado Boulder researchers have published the study that inspired the shoes' ...

Vaping while pregnant could cause craniofacial birth defects, study shows

November 16, 2017
Using e-cigarettes during pregnancy could cause birth defects of the oral cavity and face, according to a recent Virginia Commonwealth University study.

Study: For older women, every movement matters

November 16, 2017
Folding your laundry or doing the dishes might not be the most enjoyable parts of your day. But simple activities like these may help prolong your life, according to the findings of a new study in older women led by the University ...

When vegetables are closer in price to chips, people eat healthier, study finds

November 16, 2017
When healthier food, like vegetables and dairy products, is pricier compared to unhealthy items, like salty snacks and sugary sweets, Americans are significantly less likely to have a high-quality diet, a new Drexel University ...

Children's exposure to secondhand smoke may be vastly underestimated by parents

November 15, 2017
Four out of 10 children in the US are exposed to secondhand smoke, according to the American Heart Association. A new Tel Aviv University study suggests that parents who smoke mistakenly rely on their own physical senses ...

How pomegranate extract alters breast cancer stem cell properties

November 15, 2017
A University at Albany research team has found evidence suggesting that the same antioxidant that gives pomegranate fruit their vibrant red color can alter the characteristics of breast cancer stem cells, showing the superfood's ...

0 comments

Please sign in to add a comment. Registration is free, and takes less than a minute. Read more

Click here to reset your password.
Sign in to get notified via email when new comments are made.