New score measures health-related quality of life in patients with kidney failure

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Results from a new study support the validity of a score that considers various patient-reported measures and preferences for assessing health-related quality of life and promoting patient-centered care in individuals with kidney failure. The study appears in an upcoming issue of CJASN.

The score, called the Patient Reported Outcomes Measurement Information System (PROMIS)-Preference (PROPr) Summary Score, is determined from 7 domains: cognitive function, depression, fatigue, pain interference, physical functioning, sleep disturbance, and ability to participate in .

When investigators led by Istvan Mucsi, MD, Ph.D. and Jing Zhang BSc, MPH (University Health Network and University of Toronto) correlated PROPr with other health-related measures, their findings supported the validity of PROPr among 524 patients who were undergoing hemodialysis or who had recently received kidney transplants.

"Up to 70% of patients with experience persistent physical symptoms and emotional distress that substantially impair health-related quality of life. These concerns are under-reported, under-recognized and under-managed," said Dr. Mucsi. "Our results open the doors for the use of PROPr and PROMIS tools in nephrology research and in the care of patients with kidney failure."

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More information: Jing Zhang et al, Evaluation of PROMIS Preference Scoring System (PROPr) in Patients Undergoing Hemodialysis or Kidney Transplant, Clinical Journal of the American Society of Nephrology (2021). DOI: 10.2215/CJN.01880221
Citation: New score measures health-related quality of life in patients with kidney failure (2021, July 17) retrieved 22 September 2021 from
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