Why disabled young people with life-shortening conditions need better support for intimacy
Until relatively recently, children and young people with life-shortening conditions were not expected to survive into adulthood.
Jan 7, 2026
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Congenital, Hereditary, and Neonatal Diseases and Abnormalities: News and Research on Cystic Fibrosis
MeSH tree: C16.320.190
Study finds cystic fibrosis drug allows patients to safely scale back lung therapies
A new multi-site study led by researchers at CU Anschutz shows that people with cystic fibrosis (CF) who start the triple-drug therapy elexacaftor/tezacaftor/ivacaftor (ETI) can safely reduce many of their daily lung treatments ...
Dec 5, 2025
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3D-printed lungs could improve disease prevention and treatment
Lung diseases like tuberculosis and cystic fibrosis can be difficult to treat. In part, that's because the two-dimensional models researchers use to study the diseases don't accurately reflect the shape of human lungs—and ...
Oct 8, 2025
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'One gene, one disease' no more: Acknowledging the full complexity of genetics could improve and personalize medicine
Genetic inheritance may sound straightforward: One gene causes one trait or a specific illness. When doctors use genetics, it's usually to try to identify a disease-causing gene to help guide diagnosis and treatment. But ...
Oct 7, 2025
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Individuals with these two genetic conditions are seeing increased, but unequal, life expectancies
New research from the Arnold School's Department of Epidemiology and Biostatistics has found disparities in mortality rates and life expectancy for Americans living with sickle cell disease or cystic fibrosis.
Sep 25, 2025
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Scientists behind breakthrough cystic fibrosis treatment awarded top US prize
Cystic fibrosis was once a dire, likely deadly diagnosis, destroying a patient's ability to breathe and digest food—but a revolutionary new treatment offers reason for hope.
Sep 11, 2025
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Breaking a sweat: Using chloride in sweat to help diagnose cystic fibrosis
Sweat does more than just cool down an overheating body. Measuring the chemical makeup of an individual's sweat—specifically the levels of chloride, a chemical component of salt—can serve as an early warning system to help ...
Aug 20, 2025
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Wireless sweat patch could offer new way to monitor cystic fibrosis at home
A new wireless and wearable device developed by Northwestern Medicine scientists, in collaboration with Northwestern University spinout company, Epicore Biosystems, measures specific biomarkers in a person's sweat with similar ...
Aug 18, 2025
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Tuberculosis: The world's deadliest disease is once again on the rise
What infectious disease is deadliest worldwide? HIV? COVID-19? Malaria?
Aug 11, 2025
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Lung damage not main driver of persistent infections in cystic fibrosis, study finds
A new study meticulously sampled different lung regions in people with cystic fibrosis to understand why infections persist after new treatments.
Aug 7, 2025
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